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Nervous System Disorders
Question #18913
112 days ago
219

paralysed patient - #18913

Janvi

I am a bit lost and worried. My grandad has been a paralysed patient for about 5 years now after a stroke, but this last week he's been showing some signs that make me really uneasy. He's always been so strong and independent for a paralysed patient, but now he's having trouble with even simple things like swallowing. One moment he can have a conversation, and the next he just seems to zone out for a few minutes. The doctors said that's normal for a paralysed patient, but it's different than what I saw before. He’s also been feeling super tired and we noticed some twitching in his hands. I thought maybe it was just fatigue from being a paralysed patient for too long, but then I read that could be something serious! I feel like I'm stuck in this loop of worry and confusion. Should I be pushing for more tests or is it just typical aging stuff? I mean, can a paralysed patient go through phases like this, or is something more sinister trying to show up? Ugh, I just don’t know what to think anymore. Any advice would be apprecated!

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Doctors' responses

With the symptoms you’re describing, it’s understandable why you’d feel worried about your grandad. Post-stroke paralysis, while it does come with potential complications, doesn’t mean that noticeable changes like difficulty swallowing, zoning out, increased fatigue, and twitching should just be left unchecked. These could suggest either progression in his current condition or new issues arising. Difficulty swallowing and zoning out could be signs of various things like further strokes, transient ischemic attacks (TIAs), or even infections like pneumonia, which paralysed patients are more prone to due to limited mobility. Twitching, also known as fasciculations, can sometimes be benign, but given his history, it’s worth investigating. The tiredness could be linked to his overall health, but in combination with everything else, it highlights the need for a careful review. You’re correct in wanting to ensure nothing potentially serious is overlooked. It would be best to discuss these changes with his healthcare provider as soon as possible, emphasizing the new symptoms and how they differ from his usual state. A reassessment could include imaging studies, blood tests, or even a referral to a specialist like a neurologist. This will help in identifying any acute issues that need addressing, or adjustments in his care plan which could improve his quality of life. While aging can bring changes, these symptoms, given their abrupt nature, warrant more than just a wait-and-see approach. Prompt evaluation is key to ensuring his wellbeing and peace of mind for both you and him.

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