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My son has pfapa and epilepsy
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Pediatric Medicine
Question #29357
2 hours ago
7

My son has pfapa and epilepsy - #29357

Sia

I am really worried about my son because he has pfapa and epilepsy. He was diagnosed with pfapa at around 4 years old after having recurrent fevers, and it has been so overwhelming for our family. We thought things were under control, but a few months back he started having these weird seizures, and that’s when we figured out he also has epilepsy. It’s like a double whammy. The doctors say the pfapa and epilepsy aren’t related, but I can't help but wonder if there’s some connection, ya know? He’s on medication for the epilepsy now, but I feel like I'm lost with managing both conditions. Sometimes he has these fever episodes from the pfapa, and then I'm just left freaking out about the possibility of a seizure happening at the same time. I'm constantly watching him, the anxiety is through the roof! Is there any advice on how to cope with both pfapa and epilepsy? Are there things that we should really be looking out for or avoiding? Any tips from other parents who have dealt with pfapa and epilepsy would help a ton. I just want to make sure he’s safe and comfortable.

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